Where am I?

HOME
  • COMMENT Blogs
India Knight - Isn't she talking yet?

Isn't She Talking Yet? - Times Online - WBLG

« Childhood epilepsy and diet | All Posts | Having a sibling with special needs »

October 04, 2006

Some useful sites, part 1

Starting with this one here (which I am having tremendous difficulty linking to, for some reason - try specialkidsintheuk.org if it still doesn't work). It's an online forum for anyone who's the parent of a child with special needs of any kind, and one I hadn't heard of before a reader sent it to me (thanks, Natasha). As most of you will know, the wonderful Mumsnet.com also has an excellent and very active Special Needs discussion board, here. The Cystic Fibrosis Trust has its own message board here (thank you, Jenny). Parents of children with arthrogryposis - which my lovely little godson has - should go here in the first instance.

(I know this is quite a random collection of sites, but more will follow. What can I tell you - it's a pretty random kind of blog).

I assume everyone knows about Contact a Family (if not, they're here), but I personally didn't know about Face 2 Face, who do the same kind of thing and are here. Presumably everyone who needs to knows about Heartline, whose message boards are here. Oh, and of course if your child has a genetic anomaly, no matter how obscure or, er, unique, Unique is an incredibly handy resource and will also put you in touch with other parents who've been where you are. Max Appeal,  saved my sanity when we found out that our daughter had DiGeorge syndrome/22q11 deletion. Be warned, however: not all the stories have happy endings. If you're new to all this, best not click on  children's individual stories straight away... I did, feeling especially fragile and deranged, and cried for three days (literally). But the factual stuff is brilliant, and it might be an idea to start off there. More useful sites as and when I find them - and if you have any you'd like to share, please post them here.

One last one - a charity that seems really impressive, and well worth a visit if you're the parent of an older child/young person. It's called Speaking Up.

One more. My love of the BBC's Something Special (in our house, Justin is the Father, the Son and the Holy Spirit) is what started this whole blogging thing rolling. I was familiar with the brilliant kids' bit of the show's website, but somehow the bit for parents had passed me by. It's here.

Posted by India Knight on October 4, 2006 | Permalink | Comments (0) | TrackBack (0) | Email this post

TrackBack

TrackBack URL for this entry:
http://www.typepad.com/t/trackback/297284/6268576

Listed below are links to weblogs that reference Some useful sites, part 1:

Comments

Post a comment

Comments are moderated, and will not appear on this weblog until the author has approved them.

India Knight


  • India Knight was born in 1965. She lives in London with her three children, writes a weekly column for The Sunday Times and has written two fiction books, My life on a plate and Don't you want me? and a non-fiction book, The Shops. After writing an article in The Sunday Times about her daughter's special needs (Nell has a cardiac condition called truncus arteriosus, and DiGeorge Syndrome, aka 22q11 deletion) she was so inundated with e-mails that she has launched this weblog as a forum for parents in a similar position to keep in touch, compare notes and help each other. You can read about India and her daughter here.

    Send India a story by Email

RSS feeds

  • Click for an RSS 2.0 feed

three random posts

Recent Comments

  • rockmother on Disability dolls
  • Annabel on Hospital league tables
  • Maria on Travel broadens the mind, but does it heal the heart?
  • Paula on Ketogenic diet and drug resistant epilepsy
  • Julie Edwards on Ketogenic diet and drug resistant epilepsy

Links

  • India Knight archive
  • Families

Categories

  • 22q11 Deletion
  • Autism
  • Babies
  • Books
  • Cerebral Palsy
  • Charities
  • Conditions
  • Current Affairs
  • Down's syndrome
  • Education
  • Feeling Guilty
  • Food and Drink
  • Funny
  • Games
  • Help and Charities
  • Heroes and Heroines
  • In the news
  • Music
  • My story
  • Picture Gallery
  • Polls
  • Pregnancy
  • Reader Stories
  • Statementing
  • Television
  • Useful Things

Recent Posts

  • Hospital league tables
  • Ketogenic diet and drug resistant epilepsy
  • One for teachers
  • Miscarriage
  • Disability dolls

Archives

  • July 2008
  • June 2008
  • March 2008
  • January 2008
  • December 2007
  • November 2007
  • October 2007
  • September 2007
  • August 2007
  • July 2007

Other Times Online Blogs

  • Faith Central

    Urban Dirt

    Alpha Mummy

    BabyBarista

    Ariel Leve

    Big Brother Celebrity Hijack

    Charles Bremner

    Comment Central

    Cricket

    Eco Worrier

    Formula One

    India Knight

    Inside Iraq

    Irwin Stelzer

    Lord Rees-Mogg

    Mary Beard (TLS)

    Money Central

    News

    Sports Commentary

    Peter Stothard (TLS)

    Richard Lloyd Parry

    Ruth Gledhill

    Surf Nation

    Technology

    The Click