Blog star no.3

This really sweet and lovely baby is Alannah O'Malley, who is six months old today. Alannah has Tetralogy of Fallot and, like my own daughter,  DiGeorge syndrome. Thanks very much to Rosie for sending her picture in.

Comments

[rosie]

Hi Maheen, Thanks for your comments on Alannah - she's a great little girl - that pic was a year ago or more now. She's had a shunt and a repair op on the heart. Currently facing a confusing further situation on the heart but won't go into that now! If you have any specific questions feel free to pop them my way and I'll try and help. I remember the diagnosis time well and I know its tough.

[India]

Hello Maheen. The best way to get in touch with a parent in the same boat is either via Contact a Family, http://www.cafamily.org.uk/, via the Heartline message boards, http://www.heartline.org.uk/, or via Max Appeal, the DiGeorge charity, http://www.maxappeal.org.uk/. Best of luck to you and your little boy.

[Maheen]

OMG Alannah is such a swetie pie I love this pic of hers n I hope she's having a god time wih her mom & n dad at home.I have a baby boy who was diagnosed with TOF two days after his birth he had his surgery when he was 5 days old on 2/13/08 he's still in the PICU we jus found out that he has DiGeorge,if I can get in contact with a parent who has been through this,Thank you.

[Shannon]

Hello.
I have 6 children and we're expecting twins in April 07 and one of the babies has been dign. with TOF. I'm looking to talk to someone whose gone through or going through TOF..
What a beautiful girl Alannah is..
Shannon