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Isn't She Talking Yet? - Times Online - WBLG

October 05, 2006

Telling it like it is

The following is from a reader called Jo Pearson. There's a danger of going into Pollyanna-overdrive if you are the parent of a disabled child. As one of my correspondents points out below, you can survive for years in 'happy-clappy denial', and there's nothing wrong with that: whatever gets you through the day, is my view.

But there's also nothing wrong in articulating the feelings of anger, sickness and disbelief when you realise you've joined the club nobody on earth wants to belong to. Jo does this very well, I think - the bit in her letter about trying to make her child model for the Boden catalogue made me feel like laughing and crying at the same time.

Here's her story:

“I never wanted to be the mother of a special needs child. Well, who does?

I didn’t know much about disability, and I came from the sort of family who weren’t very tolerant of it. The disabled kids (Down’s Syndrome, in the main) that I saw in the 1970s were universally
 appallingly and inappropriately dressed. So when I gave birth to my son and he wasn’t ‘normal,’ my first, shameful thought was ‘Oh God, I won’t be able to dress him in anything nice’. How shallow is that?

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Posted by India Knight on October 05, 2006 at 09:51 AM in Feeling Guilty, Reader Stories | Permalink | Comments (0) | TrackBack (0) | Email this post

India Knight


  • India Knight was born in 1965. She lives in London with her three children, writes a weekly column for The Sunday Times and has written two fiction books, My life on a plate and Don't you want me? and a non-fiction book, The Shops. After writing an article in The Sunday Times about her daughter's special needs (Nell has a cardiac condition called truncus arteriosus, and DiGeorge Syndrome, aka 22q11 deletion) she was so inundated with e-mails that she has launched this weblog as a forum for parents in a similar position to keep in touch, compare notes and help each other. You can read about India and her daughter here.

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